My Life with Multiple Chronic Illnesses, Including Lyme Disease

Saturday, July 9, 2011

You know you have Lyme when....

Retrieved from the "Truth About Lyme Disease Forums" on 5/6/2011 (and slightly edited)


1) You don't care where your spouse goes, just as long as you don't have to go along.

2) You are cautioned to slow down by the doctor instead of by the police.

3) "Getting lucky" means finding your car in the parking lot.

4) Your sweetie says, "Let's go upstairs and make love" and you answer, "Honey, I can't do both!"

5) Everything hurts; but you don't know when or where it will hurt.

6) You're asleep, but others worry that you're dead.

7) You get exhausted from just waking up.

8) Your children can do math better than you can.

9) People call at 7 pm, and ask, "Did I wake you?"

10) You know all the answers, but nobody asks you the questions [if for once you don't have brain fog].

11) You look forward to your IV infusion of antibiotics [or oral antibiotics].

12) You turn down the lights because of photosensitivity rather than romance.

13) You sit in a rocking chair and get motion sickness. even when the rocking chair isn't moving.

14) Your GPS becomes your best friend when driving.

15) You get motion sickness when you drive. Forget about trying to be the passenger!

16) You burn the midnight oil until 9:00 PM or 1 AM or 6 AM depending on your internal clock's daily computations. Everyday is different.

17) You put the margarine in the toaster oven and try to butter your bread. You put the margarine in the cupboard, the knife in the refrigerator, and the toast in the sink. Then you walk around in circles trying to find the toast.

18) You get exercise by going to the bathroom 10 or more times a day.

19) One shelf of the refrigerator is filled with abx (or supplements, herbs, etc)

20) You can't remember how to turn the shower off.

21) You can't figure out how to get the key out of the ignition [you forgot
about the little black button you push in].

22) You can't find your way home and you only took a walk around the block.

23) When your little black book contains only names ending in M.D.

24) You get winded playing chess.

25) You look forward to a dull evening.

26) The best part of your day is over when your alarm clock goes off.

27) You have too much room in the house and not enough room in the medicine cabinet.

28) When you wake up with that morning-after feeling and you didn't do anything the night before.

29) When it takes longer to rest than to get tired.

30)  There are three signs of Lyme Disease. The first is your loss of memory, the other two I forget.

31) The only part of your body that gets a "workout" are your thumbs - from clicking on that remote or mousepad all day.

32) When your idea of cleaning the house is sweeping the floor with a glance.

33) You know you have Lyme when you stop to think and forget to start again

34) When you wake up screaming and stressed - then you realize you haven't fallen asleep yet.

35) When your day was a total waste of makeup.

36) When you think to yourself: "This ain't no party...this ain't no disco..."

37) When all the pharmacists and lab workers in town know you on a first name basis.


  1. doctor's cant find anything wrong with you for years and years.. meanwhile you get sicker and sicker

  2. Sad but true, Gina Renee.... so sorry you're going through that! Or that you've gone through that...?

  3. Made me cry instead of laugh cause its so true. My sister-in-law bless her heart wanted to take me to do something for my birthday,my brother was going to watch the kids and I asked her what do you have in mind and she said whatever you want...what do you enjoy to do. I started sobbing and told her I don't know I have lost the ability to enjoy anything. I have been sick so long that it just hit my I don't have that emotion anymore....another thing lymes takes away.

    1. My heart goes out to you.... I've been there done that. I have gotten a bit better after 3 years of abx (including a year of IV abx). And I've noticed that I do enjoy doing some things again, I even had my extended family over and cooked for them!

      OK, I was completely wiped out the next few days but I did actually cook everything except for the mashed potatoes which were brought by my sister-in-law. You will have the capacity to enjoy things again. Some people take longer than others to get better, depending on whether you are using abx, herbal meds, or both and just how sick you were when you started treatment. Lyme triggered a bunch of autoimmune diseases in me, which will probably never go away, but I will deal with them. At least it's not like the old days, when the dx of Lupus was a death sentence.

      I do have to admit I've become sort of a hermit... I prefer to stay home most of the time, unless maybe we're going out to a restaurant. Even then it's easier to send hubby out for take out, LOL!

      I recently applied for my and my mother's memberships in the DAR. I've gotten interested in genealogy lately and it was fun proving our line to our Patriot ancestor. I felt like it would be good for me to have something to go to outside of the house that didn't involve the medical profession, and I've enjoyed the meetings because the people there are like me, they're all genealogy nuts! :) So I've finally started to go functions outside of the house again, even if I'm feeling wonky sometimes and have to take my walker with me.

      I've said all of the above to try to encourage you, because I was in the same place you are a couple of years ago. I will keep you in my prayers... I do believe that anything is possible, even recovering from Lyme! (((((((((((((hugs))))))))))))))

  4. Thank you, I have many of these. I can't wait to read these to me husband.